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Together We Care

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Childhood Cancer and the Family: Together We Care
July 31, August 1, 2, 1998
Radisson Hotel des Gouverneurs, Montreal, Quebec

An update will be available soon!

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Table of Contents


Message of Welcome

The parents groups of Leucan, Lamplighters Children's Leukemia-Cancer Association and The Childhood Cancer Foundation ~ Candlelighters Canada are pleased to extend to all families of children with cancer, the children, teens, survivors and the professionals and volunteers who care for them an invitation to this third international Candlelighters' conference. This conference will provide wonderful opportunities to learn about new techniques in managing stress, coping with difficult situations and new advances in the clinical and psychosocial care of children with cancer. The conference offers unique opportunities to exchange ideas with internationally recognized leaders in the care of children with cancer, to meet other parents and to hear first hand from children and siblings. At this conference there is something for everyone.

We are looking forward to welcoming you in person to magnificent Montreal and a wonderful conference. Let us show you and your family true Quebec hospitality.

Sophie Marini, Louise Champoux Paillé Conference Co-Chairpersons Montreal, Quebec.

General Information

Bienvenue à Montréal mes amis! Montreal is a cosmopolitan city with a European flare. It is located 57 metres above sea level on the Island of Montreal, the largest of a group of islands at the confluence of the St. Lawrence and Ottawa rivers. Montreal is the second largest metropolitan centre in the country and largest French-speaking city outside of France. It is a magnificent city with a great deal to offer any traveller. The downtown area is both the economic heart of the city as well as one of the most attractive and diversified sections of Montreal. It is composed of the city's most beautiful churches, marvellous buildings, outstanding museums and the city's major shopping districts. There are many more areas worth being explored just a short subway ride away, including Old Montreal, and St. Helen's Island among others. You are invited to come and discover this fantastic city!

More information about the city can be found:

Greater Montreal Convention and Tourism Bureau Tel: (514) 844-5400 Fax: (514) 844 5757 Toll Free (Canada & the United States only) 1 800 363 7777

Official Conference Travel Agent

The conference travel agent is able to help you with any or all of your travel, accommodation and pre and post conference tour arrangements. Be sure to book early to obtain the most economical fares. Please call:

Travel Guild Inc. 2 Sheppard Avenue East Suite 1410 Willowdale, ON Phone: 1 800 268 4284 Toronto: (416) 229 4711

Registration

The fees for registration are as follows:

Early Bird - Postmarked before April 1, 1998

Family $125 Individual $100 Daily $75 per family or individual

After April 1, 1998 and On-site

Family $150 Individual $125 Daily $75 per family or individual

Fees include: all sessions, complimentary breakfasts and refreshment breaks on all three days, lunch on Friday and Saturday, and a sponsored children's program.

All registration fees are payable in Canadian dollars. Cheques, Visa, MasterCard, money orders or bank drafts must accompany registration.

Please mail all forms and fees to:

Childhood Cancer & the Family: Together we Care Leucan Inc. 3045 Ch. Cote Ste Catherine Montreal, Quebec H3T 1C4

For Information:

Please call: (514) 731 3696 Fax: (514) 731 2667

Click here to view the Registration Form

Hours of Registration

A registration and information desk will be located in the Foyer, Floor C (second floor below the lobby) of the Radisson Hotel. Inquiries about the conference, social events, sightseeing, tours, etc. can be answered by approaching volunteers at the registration desk. Bilingual volunteers will be available throughout the conference. Registered participants will receive their conference documents, badges and tickets here. The registration desk will be open at the following times:

Thursday July 30, 1998 7:00 pm to 9:00 pm

Friday July 31, 1998 7:30 am to 4:00 pm

Saturday August 1, 1998 7:30 am to 4:00 pm

Sunday August 2, 1998 7:30 am to 9:00 am

Click here to view the Registration Form

Cancellation Policy

Cancellations received in writing prior to June 1, 1998 will be returned less an administration fee of $50. No refunds will be issued after June 15, 1998 but substitute registrants will be welcomed.

Official Language of the Conference

Simultaneous translation will be available for all keynote sessions and those held in the main ballroom. Papers submitted in French will be presented in that language.

Conference Planning Committee

The planning committee is comprised of parents of children with cancer, professionals and volunteers. Candlelighters, Leucan and Lamplighters have brought a special flavour to the planning and together will host a unique conference. Major sections of the conference will be hosted by individual parent groups.

Logos

The official logo of the conference has been designed to represent the three organizations which provide support, working together and climbing the ladder of knowledge and provision of resources. Together they are watering the flower to help it grow. The flower has some of its petals missing representing the fact that families living with childhood cancer are faced with issues and problems other families may not experience and life may be less than perfect. The logo was designed by Immrod Construction. Special appreciation is extended to Bronia Zaks Waldman for her assistance.

Exhibits

Exhibitors will host over twenty booths in the main conference foyer. Displays will be of interest to parents, children, professionals and volunteers. The exhibits will be open throughout the conference. If you wish to have an exhibit table please notify the conference office. There is no charge for exhibit space.

Accommodation Information

The Radisson-Hotel des Gouverneurs, located in the heart of downtown Montreal, is the site of the conference. The hotel is offering special rates of $119 per night plus taxes for conference registrants. Please note that the rates are quoted in Canadian dollars and are per room, not per person. Families may stay in the same room for the same rate. If you are expecting to have children in your room and require a crib or cot please advise the hotel of your needs when you register.

The Radisson is located right next to Place Victoria, the Stock Exchange, the Montreal World Trade Centre and the brand new headquarters of the International Civil Aviation Organization. A direct passageway connects the hotel to the subway and the underground city; scenic Old Montreal is right around the corner, Place Bonaventure is across the street.

All of the rooms at the Radisson come equipped with colour TV with in-house video system and video-check out, two personalized voice mail and modem equipped phones, AM-FM radio, minibar, iron and ironing board and hairdryer. For fun and relaxation the hotel has an indoor pool and sundeck as well as a health club for use of its guests.

The hotel offers shuttle service from the airport and parking. In order to receive the special rates, hotel reservations must be made by contacting the hotel and indicating your participation. Any changes to your reservation or a cancellation must be made directly with the hotel.

Please forward your reservation to:

Radisson Hotel des Gouverneurs 777, rue Université Montréal, Québec H3C 3Z7 or call to reserve: (800) 333 3333 (514) 879 1370 Fax: (514) 879 1831

http://www.radisson-mtl.com

Social Events

The Quebec Hospitality will ensure that you and your family are treated to outstanding social events. A tasty family banquet with fun and entertainment will be held Saturday evening. It is not included in the cost of registration, but is a great opportunity to enjoy Montreal and have a wonderful funfilled evening. Family entertainment will be provided by world renowned performer André-Philippe Gagnon and promises to be une soirée spectaculaire!!

Friday evening is a free evening when conference participants can explore Montreal, visit the many sites, dine in one of the cornucopia of restaurants or relax in one of the cafés.

Children's Events and Child Care

A comprehensive children's program is being planned for children ages 4 to eighteen throughout the conference. Leora Kuttner will offer workshops for the children during the three days. Crafts, entertainment and a party will keep the children safe, busy and entertained throughout the conference.

Please indicate the number of children who will be participating in the children's program when you register.

Candlelight Service

This service which will be a part of the official ceremonies will offer families and caregivers an opportunity to witness the strength and courage of all the children, remember those children who have not survived cancer, and to renew our spirits for living and loving.

Return your registration and forward any questions to:

Childhood Cancer & the Family: Together We Care Leucan Inc. 3045 Ch. Cote Ste Catherine Montreal, Quebec H3T 1C4

Phone: (514) 731 3696 Fax: (514) 731 2667

Preliminary Programme and Highlights

Please note: this programme may be subject to slight change. The final programme will be provided to you at time of registration.

All sessions are open and it is not necessary to designate which sessions you will be attending.

Friday July 31, 1998

Opening Ceremonies

Keynote address: Removing the Shadow of Cancer: Using Mind-Body Therapies. Dr. Leora Kuttner

Plenary Session: Childhood Cancer: The Broad Spectrum Dr. Mark Greenberg, Dr. Mark Bernstein & Dr. Jocelyn Demers

Sponsored Lunch

Concurrent Sessions: (1) Keeping Track of Your Cancer Pamela Finnie (2) Pediatric Oncology Research Dr. Jean-Marie Leclerc (3) Mothers' Only Session (4) Helping the Family Whose Child Has Died Marg McGovern Gilles Deslauriers Concurrent Sessions: (1)On the Tip of the Toes: Cross Country Skiing with Survivors in Northern Quebec Dr. Sylvain Baruchel (2) Psychosocial Impacts of Childhood Cancer Marie Desmeules (3) Hospital Chemo Vs. Home Chemo for Kids with ALL Bonnie Stevens (4) Recent Advances in the Management of the Child with a Brain Tumour Dr. James Rutka (5) Ethical Decisions: Why Are They so Difficult? Dr. Eleanor Pask

Concurrent Sessions: (1) Sibling Experiences with cancer: What About Me? Interlink Nursing (2) Survivors Panel Jill Londry-Sprawson, Andrew Sprawson & Philip McCorkell (3) Lambs for Children K. Foster Morgan (4) Dealing with Fatigue Dawn Stacey Explore Montreal on Your Own in the Evening.

Saturday August 1, 1998

Candlelighters Canada Special Members Meeting - Everyone is invited.

Plenary Session: The French Experience - Parent Support Annick Ernoult

Concurrent Sessions (Morning): (1) Bone Marrow and Stem Cell Transplant Panel George Clarke Stan Whitsett (2) The Everyday Lives of Adult Survivors Jill Londry-Sprawson (3) Helping Schools Understand Joe Nardelli Colleen Goddard (4) Comment développer et maintenir une image corporelle positive chez le jeune atteint de cancer. Manon Champagne (5) Master Your Mattering Moments David Norton Dan Mornar (6) Fostering Hope Sharon McLaughlin

Humorist

Concurrent Sessions (Early Afternoon): (1) Managing Suffering David Adams (2) Travelling for Care and Treatment Shannon Scott-Findlay (3) Who Can I Talk To? Judy Heck Louise Gasse (4) Long Term Effects of Childhood Cancer Dr. Philippe Robeay (5) COOKIE Marianna Silva (6) Family Support During Therapy Marlene Mercer

Concurrent Sessions (Mid Afternoon): (1) A Recipe for Good Health: Nutrition during Cancer Treatment Neil Solomon (2) Fathers' Only Session Denis Villeneuve (3) Calling All Teens - Why Us? Teen Survivors' Testimonies of Cancer in Teenage Years Julie deVarrenes Stephanie Vielleux (4) Siblings' Session Manon Champagne (5) Bridging the Gap Interlink Nursing Program

Evening Banquet and Special Entertainment for Family and Friends. A must for all the family.

Sunday August 2, 1998

Interfaith Service

Looking Your Best - A Special Session for Teens Hosted by The Body Shop

Plenary Session: Armfuls of Time: Children's Reflections on Hope Barbara Sourkes

Plenary Session: Sharing Holy Secrets Diane Komp & Tammy Plugers.

Closing Ceremonies.

Click here to view the Registration Form


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